STAT Act to Benefit Research for Usher’s Syndrome
March 12, 2021 5:51 pmThe Speeding Therapy Access Today (STAT) Act of 2021, H.R. 1730 / S. 670 was officially introduced earlier this week... View Article
Tag Archive: usher syndrome coalition
#USHDAY
September 19, 2020 5:20 amToday is Usher Syndrome Awareness Day. This rare inherited disease affects at least 25,000 people in the US and over... View Article
Donate for the 4th of July Float In- A Benefit for 5 Points Music and Usher Syndrome Coalition
July 4, 2020 9:19 pmThe Worx Live at Gills Creek Marina Celebrate 4th of July on Smith Mountain Lake with Float-In – The Worx... View Article